Gene therapy decisions: what do families really need to know?
NCT ID NCT05810181
First seen Oct 31, 2025 · Last updated Apr 25, 2026 · Updated 18 times
Summary
This study talks to patients and parents of children with sickle cell disease to learn what they think and want to know about gene therapy. Researchers will use these insights to create an online tool that helps families make informed choices. No treatment is given—this is purely about understanding needs and building better decision aids.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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St. Jude Children's Research Hospital
RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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