What do families really think about gene therapy? new study aims to find out.
NCT ID NCT05810181
First seen Oct 31, 2025 · Last updated May 13, 2026 · Updated 22 times
Summary
This study talks to patients and parents of children with rare diseases like sickle cell disease to learn what they believe and want to know about gene therapy. Researchers will use these insights to build an online tool with educational content and decision aids. No treatment is given—this is purely about understanding needs and improving communication.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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St. Jude Children's Research Hospital
RECRUITINGMemphis, Tennessee, 38105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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