New hope for kids with rare Muscle-Weakening disease

NCT ID NCT06607627

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study tests a drug called gefurulimab in 12 children aged 6 to 18 with generalized myasthenia gravis, a condition that causes muscle weakness. The drug works by blocking a part of the immune system to reduce symptoms. Participants receive weekly injections, and researchers will check how the drug moves through the body, its safety, and whether it improves muscle strength.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

gefurulimab (a drug that blocks a part of the immune system called complement C5)

What this could lead to

If successful, this could provide a new treatment option to control muscle weakness in children with generalized myasthenia gravis.

What could go wrong

This is a small, early-phase study with only 12 participants, so results may not apply to all patients. The drug requires lifelong use and carries infection risks, including meningococcal infection.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

myasthenia gravis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Research Site

    RECRUITING

    Washington D.C., District of Columbia, 20010, United States

  • Research Site

    RECRUITING

    Norfolk, Virginia, 23507, United States

  • Research Site

    RECRUITING

    Joinville, 89202-451, Brazil

  • Research Site

    RECRUITING

    Salvador, 41253-190, Brazil

  • Research Site

    RECRUITING

    São José do Rio Preto, 15090-000, Brazil

  • Research Site

    RECRUITING

    São Paulo, 0438-002, Brazil

  • Research Site

    RECRUITING

    São Paulo, 05403-000, Brazil

  • Research Site

    RECRUITING

    Saitama-Shi, 330-8777, Japan

  • Research Site

    WITHDRAWN

    Bydgoszcz, 85-065, Poland

  • Research Site

    WITHDRAWN

    Lodz, 93-338, Poland

  • Research Site

    RECRUITING

    Warsaw, 02-097, Poland

  • Research Site

    RECRUITING

    New Taipei City, 23561, Taiwan

  • Research Site

    RECRUITING

    Taipei, 11101, Taiwan