Hope for rare bone disease: experimental drug garetosmab enters final testing phase
NCT ID NCT05394116
First seen Jan 17, 2026 · Last updated May 21, 2026 · Updated 18 times
Summary
This study tests an experimental drug called garetosmab in 63 adults with fibrodysplasia ossificans progressiva (FOP), a rare genetic condition where soft tissues turn into bone. The goal is to see if the drug safely reduces new abnormal bone growth and flare-ups. Participants receive either garetosmab or a placebo, and researchers monitor side effects and drug levels in the blood.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Amsterdam University Medical Center
Amsterdam, North Holland, 1081 HV, Netherlands
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Clinica Universidad de La Sabana
Chía, Cundinamarca, 140013, Colombia
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HUS Children and Adolescents Park Hospital Clinical Trial Unit
Helsinki, Stenbäckinkatu 11, 00029, Finland
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Hopital Lariboisiere
Paris, 75010, France
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Hospital Israelita Albert Einstein
São Paulo, 05652-900, Brazil
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Hospital Kuala Lampur
Kuala Lumpur, 50586, Malaysia
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Hospital Universitario Ramon y Cajal
Madrid, 28034, Spain
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Hôpital Lapeyronie
Montpellier, 34090, France
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IRCCS Istituto Giannina Gaslini
Genoa, 16147, Italy
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Kyushu University Hospital
Fukuoka, 812-8582, Japan
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Nagoya University Hospital
Nagoya, Aichi-ken, 466-8560, Japan
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Oita University Hospital
Yufu, Oita Prefecture, 879-5593, Japan
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Queen Mary Hospital
Hong Kong, 22553838, Hong Kong
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Royal National Orthropaedic Hospital NHS Trust
Middlesex, Greater London, HA7 4LP, United Kingdom
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Royal North Shore Hospital
St Leonards, New South Wales, 2065, Australia
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Seoul National University Hospital
Seoul, 03080, South Korea
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Szpital Centrum Medyczne Medyk
Rzeszów, Podkarpackie Voivodeship, 35-326, Poland
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Tongji Hospital of Tongji University
Shanghai, 200065, China
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Universidad de Concepcion
Concepción, Biobio, 4030000, Chile
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University of California Los Angeles (UCLA) Medical Center
Los Angeles, California, 90095, United States
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University of Cape Town
Rondebosch, Cape Town, 7700, South Africa
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Vanderbilt University Medical Center
Nashville, Tennessee, 37232, United States
Conditions
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