Massive 10-Year hunt for clues to mysterious kidney diseases

NCT ID NCT03949972

Summary

This study is creating a long-term registry to track 500 children and adults with rare kidney diseases called FSGS and Minimal Change Disease. It will collect detailed health information and biological samples (like blood and urine) from participants over 10 years. The goal is to build a large resource for scientists to better understand these diseases and develop future treatments, not to test a new therapy directly.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Charité University Hospital

    RECRUITING

    Berlin, Germany

    Contact

    Contact Email: •••••@•••••

    Contact

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Kindernephrologie Dachau

    RECRUITING

    Dachau, 85221, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Kindernierenzentrum Bonn

    RECRUITING

    Bonn, 53127, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Klinikum St. Georg

    RECRUITING

    Leipzig, 04129, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Klinikum Stuttgart

    RECRUITING

    Stuttgart, 70174, Germany

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

    Contact

  • Uniklinik RWTH Aachen

    NOT_YET_RECRUITING

    Aachen, 52074, Germany

    Contact Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

  • University Hospital Erlangen

    NOT_YET_RECRUITING

    Erlangen, Germany

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

  • University Hospital Essen

    RECRUITING

    Essen, 45147, Germany

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University Hospital Heidelberg

    RECRUITING

    Heidelberg, 69120, Germany

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University Hospital Marburg

    RECRUITING

    Marburg, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University Hospital Münster

    RECRUITING

    Münster, Germany

    Contact Email: •••••@•••••

    Contact

    Contact Email: •••••@•••••

    Contact

  • University Hospital of Cologne

    RECRUITING

    Cologne, North Rhine-Westphalia, 50937, Germany

    Contact

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.