French-Language scale for rare nerve disease put to the test
NCT ID NCT06878235
First seen Jun 27, 2026 ยท Last updated Jun 27, 2026
Summary
This study checks whether a French version of a scale called PLSFRS works well for people with primary lateral sclerosis (PLS), a rare nerve disease. Researchers will ask 80 patients to fill out the questionnaire during routine check-ups every 3 to 6 months. The goal is to see if the scale reliably measures how the disease affects daily function, not to test any treatment.
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Study facts
What this study's own registry entry says, in plain language.
- Participants
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About 80 people
The number the study aims to enrol. It can still change while the study runs.
- Started
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Apr 2025
- Expected to finish
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Jan 2027
An estimate. End dates often move.
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Adult patients with primary lateral sclerosis
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Patients with primary lateral sclerosis (PLS) * Age over 18 years * Informed consent signed * Patients cared in a French ALS centre Exclusion Criteria: * patients with no oral and written command of the French language * Patients unable to answer a questionnaire * Opposition to data processing
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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University Hospital
Nice, 05000, France
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University hospital
Brest, 29000, France
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University hospital
Clermont-Ferrand, 63000, France
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University hospital
Lille, 59000, France
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University hospital
Limoges, 87000, France
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University hospital
Lyon, 69000, France
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University hospital
Tours, 37044, France
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