New tool aims to ease Parents' stress in heart defect decisions
NCT ID NCT04437069
First seen Feb 22, 2026 · Last updated Apr 29, 2026 · Updated 7 times
Summary
This study looks at whether a web-based decision aid helps parents of unborn or newborn babies with life-threatening congenital heart disease make informed medical choices. About 135 parents will be randomly assigned to use the decision aid alone or with an extra values-clarification exercise. The main goal is to see if these tools reduce parents' stress and improve decision quality three months after the decision.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Primary Children's Hospital Fetal and Pediatric Cardiology Clinics or Cardiac or Neonatal Intensive Care Units
Salt Lake City, Utah, 84108, United States
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University of Utah
Salt Lake City, Utah, 84108, United States
Conditions
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