Family lung disease mystery: researchers track relatives to find clues

NCT ID NCT03437486

First seen Jan 11, 2026 · Last updated May 15, 2026 · Updated 20 times

Summary

This study follows 750 close relatives of people with a rare, inherited form of lung scarring called familial pulmonary fibrosis. Participants have no symptoms yet but carry a higher genetic risk. Researchers will track their health over time with yearly surveys and in-person visits every two years to understand how the disease starts and who might develop it.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Vanderbilt University Medical Center

    RECRUITING

    Nashville, Tennessee, 37232, United States

    Contact

Conditions

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