New fabry drug under the microscope: will it protect kidneys better?

NCT ID NCT06095713

First seen May 02, 2026 · Last updated Jun 14, 2026 · Updated 6 times

Summary

This study follows 60 adults with Fabry disease who are either starting or switching to a new enzyme therapy called pegunigalsidase-alfa. Researchers want to see how well it protects kidney function over two years in real-world clinics. The goal is to gather long-term safety and effectiveness data from eight expert centers in Germany.

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Contacts and locations

Locations

  • Fabry disease center Berlin - Charité - Universitätsmedizin Berlin

    Berlin, Germany

  • Fabry disease center Cologne, Universitätsklinikum Köln

    Cologne, Germany

  • Fabry disease center Hamburg, Universitätsklinikum Hamburg

    Hamburg, Germany

  • Fabry disease center Hannover, Universitätsklinikum Hannover

    Hanover, Germany

  • Fabry disease center Mainz, Universitätsmedizin Mainz

    Mainz, Germany

  • Fabry disease center Münster, Universitätsklinikum Münster

    Münster, Germany

  • Fabry disease center Würzburg, Universitätsklinikum Würzburg

    Würzburg, Germany

  • Fachinternistische Gemeinschaftspraxis, Müllheim

    Müllheim, Germany

Conditions

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