Heart damage in fabry disease: new study tracks silent progression

NCT ID NCT07506083

First seen Apr 04, 2026 · Last updated May 01, 2026 · Updated 5 times

Summary

This study follows 31 Chinese adults with a specific genetic mutation (IVS4+919G>A) that causes Fabry disease, a condition where harmful substances build up and damage organs, especially the heart. Researchers use advanced heart scans and blood tests to track how the disease progresses over time, even before symptoms appear. The goal is to improve screening and monitoring guidelines for this population.

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Contacts and locations

Locations

  • Division of Cardiology, Department of Medicine and Therapeutics Faculty of Medicine, The Chinese University of Hong Kong

    Shatin, New Territories, Sha Tin, Hong Kong

Conditions

Explore the condition pages connected to this study.