New registry aims to unlock secrets of rare gynecologic Paget's disease
NCT ID NCT03564483
First seen Feb 01, 2026 · Last updated May 06, 2026 · Updated 16 times
Summary
This study is creating a registry of 100 women diagnosed with extramammary Paget's disease (EMPD) of the vulva or perianal area. Researchers will collect information on treatments, outcomes, and long-term survival, as well as tissue and swab samples to better understand the disease and the skin microbiome. The goal is to gather knowledge that could improve future care for this rare condition.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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