Hope for rare neurological disease: extension trial offers continued treatment
NCT ID NCT06664853
Summary
This study provides continued treatment with EryDex to patients with ataxia telangiectasia who completed the previous NEAT trial. The 12-month extension allows researchers to gather more safety data while offering treatment to all eligible participants. The study focuses on monitoring side effects and safety in this rare neurological condition.
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Contacts and locations
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Locations
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Cincinnati Children's Hospital, Division of neurology
Cincinnati, Ohio, 45229, United States
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Copenhagen University Hospital, Rigshospitalet, Department of Pediatric Neurology
Copenhagen, Denmark, 2100, Denmark
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Great Ormond Street Hospital for Children, Zayed Centre for Research
London, United Kingdom, WC1N 1DZ, United Kingdom
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Hospital Universitari Vall d'Hebron, Department of pediatric neurology
Barcelona, Spain, 08035, Spain
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Hospital Universitario La Paz, Department of pediatric neurology
Madrid, Spain, 28046, Spain
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IKF Pneumologie GmbH & Co. KG; Institut für klinische Forschung Pneumologie Clinical Research Center Respiratory Diseases
Frankfurt am Main, Hesse, 60596, Germany
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Instytut "Pomnik-Centrum Zdrowia Dziecka", Immunology clinic
Warsaw, 04-736, Poland
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MedPolonia sp zoo
Poznan, 60-693, Poland
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Nottingham Children's Hospital, Queen's Medical Center, Children's neurology
Nottingham, United Kingdom, NG7 2UH, United Kingdom
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Oslo University Hospital, Rikshospitalet, Division of Pediatric and Adolescent Medicine, Norwegian National Unit for Newborn Screening
Oslo, Norway, 0372, Norway
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Policlinico Umberto I, La sapienza University, Department of neurosciences and menthal health
Roma, Italy, 00161, Italy
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Saint Peter's University Hospital, Inc.
New Brunswick, New Jersey, 08901, United States
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Spedali Civili di Brescia, Pediatric immunology department
Brescia, Italy, 25213, Italy
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St George's University Hospitals NHS Foundation Trust, Centre for Neonatal and Paediatric Infection
London, SE1 7EH, United Kingdom
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The Johns Hopkins Hospital, Division of pediatric allergy and immunology
Baltimore, Maryland, 21289, United States
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UT Health Houston, Department of pediatrics, division of child & adolescent neurology
Houston, Texas, 77030, United States
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Universitary Hospital Virgen del Rocío
Seville, 41013, Spain
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University Children's Hospital Zürich - Eleonore Foundation
Zurich, CH 8008, Switzerland
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University Hospital Frankfurt, Pediatric and Adolescent Clinic
Frankfurt, Germany, 60590, Germany
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University Hospitals Birmingham NHS Foundation Trust
Birmingham, B152GW, United Kingdom
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University of California Los Angeles (UCLA), Ataxia Center and HD Center of excellence
Los Angeles, California, 90095, United States
Conditions
Explore the condition pages connected to this study.