Massive hemophilia study aims to uncover hidden costs and care gaps in china

NCT ID NCT07454239

First seen Mar 08, 2026 · Last updated May 12, 2026 · Updated 7 times

Summary

This study is gathering information from 500 male patients aged 12 and older with severe hemophilia A or B in China. Researchers are measuring the disease's burden, treatment costs, and how care varies across different regions and centers. The goal is to identify gaps in care and improve future treatment access, not to test a new drug or cure.

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Contacts and locations

Locations

  • Instiute of Hematology and Blood Diseases Hospital CAMS&PUMC

    Tianjin, Tianjin Municipality, 300020, China

Conditions

Explore the condition pages connected to this study.