Researchers launch registry to track rare histiocytosis diseases
NCT ID NCT03329274
First seen Nov 01, 2025 · Last updated May 19, 2026 · Updated 28 times
Summary
This study creates a registry for up to 500 people with Erdheim-Chester disease and other histiocytoses. Researchers will collect health information, treatment details, and patient experiences over time to better understand these rare conditions. Some participants may also be asked to complete a brief phone interview.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-••••
Locations
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Memorial Sloan Kettering Cancer Center
RECRUITINGNew York, New York, 10065, United States
Contact
Contact Phone: •••-•••-••••
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.