Massive 15-year study launched to crack the code on rare brain-spine vessel disease

NCT ID NCT07604688

First seen May 29, 2026 · Last updated Jun 16, 2026 · Updated 3 times

Summary

This study is a large registry that will collect data from over 10,000 people in China diagnosed with a rare condition where abnormal connections form between arteries and veins in the brain or spine. Researchers will track how common the disease is, what treatments are used, and how well patients recover over time. The goal is to learn more about the disease and help doctors make better treatment decisions.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Xuanwu Hospital

    RECRUITING

    Beijing, 100053, China

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

The condition(s) this trial relates to.

dural sinus malformation Fistula

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.