Major study tracks DMD in boys to map disease course

NCT ID NCT03882827

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 220 boys aged 4 to 9 with Duchenne muscular dystrophy (DMD) for up to 3 years. Researchers collect data on muscle strength, walking ability, heart and lung function, and quality of life to better understand how the disease progresses. The goal is to gather natural history information, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Duchenne muscular dystrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Brest University Hospital Centre

    RECRUITING

    Brest, 29609, France

  • CHR Hôpital de la Citadelle

    NOT_YET_RECRUITING

    Liège, 4000, Belgium

  • CHU Lille

    RECRUITING

    Lille, 59000, France

  • Centre Hospitalier Universitaire - Hôpital Gui de Chauliac

    NOT_YET_RECRUITING

    Montpellier, 34295, France

  • Centre Hospitalier Universitaire Brugmann

    RECRUITING

    Brussels, 1020, Belgium

  • Great Ormond Street Hospital & University College London Hospital

    RECRUITING

    London, WC1N 1EH, United Kingdom

  • Hopital Femme Mere Enfant

    RECRUITING

    Bron, 69677, France

  • Hopital la Timone Enfants

    RECRUITING

    Marseille, 13385, France

  • Hospital La Fe de Valencia

    ACTIVE_NOT_RECRUITING

    Valencia, 46026, Spain

  • Hospital Sant Joan de Deu Esplugues de Llobregat

    RECRUITING

    Esplugues de Llobregat, 8950, Spain

  • Hôpital Armand Trousseau

    RECRUITING

    Paris, 75011, France

  • Hôpital Hautepierre

    RECRUITING

    Strasbourg, 67000, France

  • Institute of Genetic Medicine

    RECRUITING

    Newcastle, United Kingdom

  • UZ Leuven

    RECRUITING

    Leuven, 3000, Belgium

  • University Hospital of Bordeaux

    RECRUITING

    Bordeaux, 33076, France