Major study tracks DMD in boys to map disease course
NCT ID NCT03882827
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 220 boys aged 4 to 9 with Duchenne muscular dystrophy (DMD) for up to 3 years. Researchers collect data on muscle strength, walking ability, heart and lung function, and quality of life to better understand how the disease progresses. The goal is to gather natural history information, not to test a new treatment.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Brest University Hospital Centre
RECRUITINGBrest, 29609, France
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CHR Hôpital de la Citadelle
NOT_YET_RECRUITINGLiège, 4000, Belgium
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CHU Lille
RECRUITINGLille, 59000, France
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Centre Hospitalier Universitaire - Hôpital Gui de Chauliac
NOT_YET_RECRUITINGMontpellier, 34295, France
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Centre Hospitalier Universitaire Brugmann
RECRUITINGBrussels, 1020, Belgium
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Great Ormond Street Hospital & University College London Hospital
RECRUITINGLondon, WC1N 1EH, United Kingdom
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Hopital Femme Mere Enfant
RECRUITINGBron, 69677, France
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Hopital la Timone Enfants
RECRUITINGMarseille, 13385, France
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Hospital La Fe de Valencia
ACTIVE_NOT_RECRUITINGValencia, 46026, Spain
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Hospital Sant Joan de Deu Esplugues de Llobregat
RECRUITINGEsplugues de Llobregat, 8950, Spain
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Hôpital Armand Trousseau
RECRUITINGParis, 75011, France
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Hôpital Hautepierre
RECRUITINGStrasbourg, 67000, France
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Institute of Genetic Medicine
RECRUITINGNewcastle, United Kingdom
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UZ Leuven
RECRUITINGLeuven, 3000, Belgium
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University Hospital of Bordeaux
RECRUITINGBordeaux, 33076, France
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a lower steroid dose preserve strength in young boys with DMD?
- Can a targeted infusion slow muscle decline in duchenne? a new trial aims to find out.
- Can a massive patient database unlock new treatments for muscular dystrophy?
- Umbilical cord stem cells aim to slow muscle loss in duchenne boys
- Experimental drug aims to preserve arm and lung function in boys with advanced duchenne
- Experimental drug KER-065 aims to slow muscle decline in duchenne muscular dystrophy