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Global registry aims to speed up duchenne research by linking patients to studies

NCT ID NCT02069756

Recruiting now Knowledge-focused Sponsor: The Duchenne Registry Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is building a worldwide online registry for people with Duchenne or Becker muscular dystrophy, including female carriers. Participants share their health information to help researchers learn more about the disease and to match patients with clinical trials. The goal is to speed up research and improve care, not to test a new treatment.

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Conditions

The condition(s) this trial relates to.

Becker muscular dystrophy Duchenne muscular dystrophy muscular dystrophy neuromuscular disease caused by qualitative or quantitative defects of dystrophin symptomatic form of muscular dystrophy of Duchenne and Becker in female carriers

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BECKER MUSCULAR DYSTROPHY DUCHENNE MUSCULAR DYSTROPHY DYSTROPHINOPATHY DYSTROPHINOPATHY FEMALE CARRIER DYSTROPHINOPATHY SYMPTOMATIC FEMALE CARRIER

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • The Duchenne Registry / PPMD

    RECRUITING

    Washington D.C., District of Columbia, 20005, United States

    Contact Email: •••••@•••••

    Contact Email: •••••@•••••

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Other studies related to the condition(s) this trial covers.