HHT patients share how symptoms shape their lives
NCT ID NCT07191639
First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 24 times
Summary
This study looked at how symptoms of Hereditary Hemorrhagic Telangiectasia (HHT) impact quality of life. Researchers used a special questionnaire created by and for HHT patients. 185 adults took part to help doctors better understand which symptoms matter most.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Hôpital Femme-Mère-Enfant - Centre de référence pour la maladie de Rendu-Osler
Bron, 69500, France
Conditions
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