Scientists track rare childhood cancer gene through families

NCT ID NCT01247597

Summary

This study aims to learn about a rare genetic condition called DICER1 syndrome, which increases the risk for several rare cancers, especially in children. Researchers are enrolling 1,500 people who have these cancers or are close relatives, to collect family histories, medical records, and genetic samples. The goal is to understand how the condition is inherited, what health problems it causes, and to create guidelines for better monitoring and care in the future.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Cancer Institute - Shady Grove

    RECRUITING

    Rockville, Maryland, 20850, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.