New study aims to better understand von hippel lindau disease through data collection
NCT ID NCT05955014
First seen Nov 20, 2025 · Last updated May 12, 2026 · Updated 22 times
Summary
This study collects information from 125 people with von Hippel Lindau (vHL) disease to track how the disease changes over time, what treatments they receive, and how it affects their quality of life. Participants must have a genetic or clinical diagnosis of vHL. The goal is to better understand the disease and improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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M D Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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