Researchers track health of new parents with cystic fibrosis
NCT ID NCT06296394
Summary
This study aims to understand how becoming a parent affects the health of people living with cystic fibrosis (CF). Researchers will follow 146 new parents with CF for up to five years, collecting survey data on stress, mental health, and treatment routines, while also tracking their lung function from medical records. The goal is to identify factors related to parenting—like stress or depression—that might impact a person's CF health, especially now that most participants use modern CFTR modulator medications.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Boston Children's Hospital/Brigham and Women's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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Johns Hopkins University
RECRUITINGBaltimore, Maryland, 21218, United States
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Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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Medical University of South Carolina
RECRUITINGCharleston, South Carolina, 29425, United States
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National Jewish Health
RECRUITINGDenver, Colorado, 80206, United States
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Northwestern University
NOT_YET_RECRUITINGEvanston, Illinois, 60208, United States
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Oregon Health and Science University
RECRUITINGPortland, Oregon, 97239, United States
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University of Alabama-Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66160, United States
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of North Carolina
RECRUITINGChapel Hill, North Carolina, 27599, United States
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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University of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
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University of Texas-Southwestern
RECRUITINGDallas, Texas, 75390, United States
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
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Conditions
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