New study aims to help cystic fibrosis patients navigate lung transplant decisions
NCT ID NCT06030206
First seen Jan 10, 2026 · Last updated Apr 30, 2026 · Updated 16 times
Summary
This study looks at whether a website with educational resources can help people with cystic fibrosis (CF) feel more prepared to discuss lung transplant with their doctors. Many people with CF who die never considered a lung transplant, especially those from marginalized communities. The study involves 132 participants with low lung function who will use the website and attend Zoom sessions over 6 months. The goal is to increase awareness and understanding of lung transplant options.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylor College of Medicine
Houston, Texas, 77030, United States
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Johns Hopkins University
Baltimore, Maryland, 21205, United States
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Maine Health
Portland, Maine, 04102, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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University of California at Los Angeles (UCLA)
Los Angeles, California, 980095, United States
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University of Cincinnati
Cincinnati, Ohio, 45267, United States
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University of Kansas
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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University of Pittsburgh
Pittsburgh, Pennsylvania, 15213, United States
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University of Washington Medical Center - Montlake
Seattle, Washington, 98195, United States
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Yale University
New Haven, Connecticut, 06520, United States
Conditions
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