Listening to the unheard: how patients navigate cancer of unknown primary

NCT ID NCT07712965

Not yet recruiting Knowledge-focused Sponsor: The Clatterbridge Cancer Centre NHS Foundation Trust Source: ClinicalTrials.gov ↗

First seen Jul 20, 2026 · Last updated Jul 21, 2026 · Updated 1 time

Summary

This study explores the personal stories of people diagnosed with cancer of unknown primary (CUP) and their carers. Through interviews and focus groups, researchers aim to understand the emotional and practical challenges of living with this uncertain diagnosis. The findings will help design better communication, support, and care pathways for patients and families.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could lead to more compassionate, coordinated care and better support resources for people with cancer of unknown primary and their carers.
What could go wrong: This is a small, qualitative study (20 participants) that gathers opinions and experiences, not a treatment trial. Findings may not apply to all CUP patients or lead to immediate changes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

cancer cancer of unknown primary site cryptogenic organizing pneumonia neoplasm Neoplasms, Unknown Primary

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CANCER CANCER UNKNOWN PRIMARY CUP

Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••

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