Spanish SMA study aims to map disease journey in 1,000 patients
NCT ID NCT07231549
First seen Nov 17, 2025 · Last updated Apr 25, 2026 · Updated 13 times
Summary
This study will follow up to 1,000 people with spinal muscular atrophy (SMA) in Spain over many years to see how their condition changes over time. Researchers will collect information from routine doctor visits, including motor skills, breathing support, and feeding needs. The goal is to better understand SMA in everyday life and improve how patient data is gathered and used.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hospital Sant Joan de Déu
RECRUITINGEsplugues de Llobregat, Spain
Conditions
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