Global hunt for answers on newly discovered heart syndrome
NCT ID NCT06508164
Summary
This study is creating a global registry to learn about a rare, newly discovered genetic heart condition called Calcium Release Deficiency Syndrome (CRDS). It aims to enroll 500 people who carry specific genetic changes to better understand the range of symptoms, identify risks, and find the best ways to manage the condition. The goal is to gather information to improve future care for patients and families affected by CRDS.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Aarhus University Hospital
RECRUITINGAarhus, DK-8200 N, Denmark
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Antwerp University Hospital
RECRUITINGEdegem, Antwerp, 2650, Belgium
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Bordeaux
RECRUITINGBordeaux, Nouvelle-Aquitaine, 33404, France
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's & Women's Health Centre of British Columbia
RECRUITINGVancouver, British Columbia, V6H 3N1, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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City St George's, University of London
RECRUITINGLondon, EC1V 0HB, United Kingdom
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Duke University
RECRUITINGDurham, North Carolina, 27710, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Garvan Institute of Medical Research
RECRUITINGDarlinghurst, New South Wales, 2010, Australia
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hamilton General Hospital
RECRUITINGHamilton, Ontario, L8L 2X2, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Institut Universitaire de Cardiologie et de Pneumologie de Québec-Université Laval
RECRUITINGQuébec, Quebec, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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London Health Sciences Centre - University Hospital
RECRUITINGLondon, Ontario, N6A 5A5, Canada
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Montréal Heart Institute
RECRUITINGMontreal, Quebec, H1T 1C8, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Shaare Zedek Medical Center
RECRUITINGJerusalem, 9103102, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Universitair Ziekenhuis Brussel
RECRUITINGBrussels, 1090, Belgium
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Calgary
RECRUITINGCalgary, Alberta, T2N 1N4, Canada
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California
RECRUITINGSan Francisco, California, 94143, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.