Rare bone disorder study seeks to unlock genetic secrets
NCT ID NCT05368064
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study aims to better understand Cleidocranial Dysplasia (CCD), a rare genetic condition affecting bones and teeth. Researchers will collect medical history, quality-of-life surveys, and genetic samples from 300 participants. The goal is to improve diagnosis and care for people with CCD.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Johns Hopkins University
Baltimore, Maryland, 21205, United States