New study tracks heart disease in rare genetic disorder
NCT ID NCT06865482
First seen Nov 01, 2025 · Last updated Apr 27, 2026 · Updated 20 times
Summary
This study watches how heart disease develops and changes over time in 65 people with Friedreich ataxia, a rare genetic condition. Participants must be at least 6 years old and have a thickened heart muscle. The goal is to learn more about the disease, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
Contact Email: •••••@•••••
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Campinas State University (UNICAMP)
RECRUITINGCampinas, São Paulo, 13083-887, Brazil
Contact Email: •••••@•••••
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Centre Hospitalier de Universite de Montreal (CHUM)
RECRUITINGMontreal, Quebec, H2X 0C1, Canada
Contact Email: •••••@•••••
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Cincinnati Children's Hospital
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Hospital Univeritario Puerta de Hierro de Majadahonda
RECRUITINGMajadahonda, Madrid, 28222, Spain
Contact Email: •••••@•••••
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Indiana University - Riley Children's Health
RECRUITINGIndianapolis, Indiana, 46202, United States
Contact Email: •••••@•••••
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Institut de Cardiologie Hopital Pitie Salpetriere
RECRUITINGParis, 75013, France
Contact Email: •••••@•••••
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Instituto D'or de Pesquisa e Ensino - Hospital São Rafael
RECRUITINGSalvador, Estado de Bahia, 41253-190, Brazil
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact Email: •••••@•••••
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Motol University Hospital and the Second Faculty of Medicine
RECRUITINGPrague, 15006, Czechia
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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University Hospital Tübingen
RECRUITINGTübingen, Baden-Wurttemberg, 72076, Germany
Contact Email: •••••@•••••
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University of California San Diego
RECRUITINGLa Jolla, California, 92037, United States
Contact Email: •••••@•••••
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University of South Florida
RECRUITINGTampa, Florida, 33612, United States
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Washington University School of Medicine in St. Louis
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.