Massive NIH study tracks rare childhood muscle diseases
NCT ID NCT01568658
Summary
This study aims to better understand inherited nerve and muscle disorders that begin in childhood, like certain muscular dystrophies. Researchers will follow 9,300 participants—including patients, their family members, and healthy volunteers—over years to track how symptoms change and identify genetic causes. The goal is to gather information that could help design future treatments, but this study itself does not test any new therapies.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.