New website aims to bridge gap for cystic fibrosis patients facing tough transplant decisions
NCT ID NCT06030206
Summary
This study is testing whether a special educational website can help people with advanced cystic fibrosis feel more prepared to talk with their doctors about lung transplant. Researchers want to see if the website improves knowledge and readiness for these important conversations, especially for patients from communities that often have less access to transplant care. The study involves 132 participants who will use the website and complete surveys over six months.
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Contacts and locations
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Locations
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Baylor College of Medicine
Houston, Texas, 77030, United States
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Johns Hopkins University
Baltimore, Maryland, 21205, United States
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Maine Health
Portland, Maine, 04102, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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University of California at Los Angeles (UCLA)
Los Angeles, California, 980095, United States
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University of Cincinnati
Cincinnati, Ohio, 45267, United States
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University of Kansas
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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University of Pittsburgh
Pittsburgh, Pennsylvania, 15213, United States
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University of Washington Medical Center - Montlake
Seattle, Washington, 98195, United States
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Yale University
New Haven, Connecticut, 06520, United States
Conditions
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