Large study sheds light on brain bleed risks in rare blood vessel disorder
NCT ID NCT01158807
First seen Apr 29, 2026 · Last updated May 19, 2026 · Updated 5 times
Summary
This study aimed to find out what makes some people with hereditary hemorrhagic telangiectasia (HHT) more likely to have bleeding in the brain. Researchers collected health information and blood samples from over 2,200 participants across North America. The goal was to better understand risk factors like genetics and brain imaging findings, which could help doctors improve care for people with HHT.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Barrow Neurological Institute
Phoenix, Arizona, 85013, United States
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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David Geffen School of Medicine at University of California, Los Angeles
Los Angeles, California, 90095, United States
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Georgia Regents University
Augusta, Georgia, 30912-3135, United States
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HHT Foundation International, Inc.
Monkton, Maryland, 21111, United States
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Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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Johns Hopkins University School of Medicine
Baltimore, Maryland, 21287, United States
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Mayo Clinic
Rochester, Minnesota, 55905, United States
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St. Antonius Hospital
Nieuwegein, 3435, Netherlands
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St. Michael's Hospital
Toronto, Ontario, M5B 1W8, Canada
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St. Paul's Hospital, University of British Columbia
Vancouver, British Columbia, V6Z 1Y6, Canada
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UCHealth Pulmonary Vascular Disease Clinic - Anschutz Medical
Aurora, Colorado, 80045, United States
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University of Alberta
Edmonton, Alberta, T6G 2B7, Canada
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University of Arkansas for Medical Sciences
Little Rock, Arkansas, 72205, United States
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University of California, San Francisco
San Francisco, California, 94110, United States
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University of North Carolina at Chapel Hill
Chapel Hill, NC, North Carolina, 27599, United States
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University of Utah
Salt Lake City, Utah, 84132, United States
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Washington University School of Medicine
St Louis, Missouri, 63110, United States
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Yale University
New Haven, Connecticut, 06520-8042, United States
Conditions
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