Support group aims to empower parents of kids with rare muscle disorders
NCT ID NCT07356063
First seen Jan 27, 2026 · Last updated May 14, 2026 · Updated 15 times
Summary
This study tests whether a special support group can boost the confidence (self-efficacy) of primary caregivers for children with spinal muscular atrophy or Duchenne muscular dystrophy. About 30 caregivers will take part, and their confidence levels will be measured before and after 8 weeks of the program. The goal is to see if this kind of support makes a real difference in their daily caregiving experience.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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