Study asks: what do caregivers of rare disease patients really need?
NCT ID NCT03990428
Summary
This study aims to understand the support needs of family and friends who provide unpaid care for people with rare histiocytic diseases like Erdheim-Chester disease. Researchers will survey 250 caregivers to learn about their challenges and quality of life. The goal is to gather information that could help improve future support services for these caregivers.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
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Locations
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Memorial Sloan Kettering Cancer Center
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Contact
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Conditions
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