New global registry aims to unlock secrets of rare heart rhythm disorder
NCT ID NCT06508164
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a worldwide registry for people with Calcium Release Deficiency Syndrome (CRDS), a rare genetic heart condition that can cause dangerous heart rhythms. Researchers will collect health information from 500 participants to better understand the condition's symptoms, risks, and best treatments. The goal is to improve care for people with CRDS by learning from real-world data.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help doctors identify who is at highest risk of dangerous heart rhythms and guide better treatment decisions for people with CRDS.
What could go wrong
This is an observational registry, not a treatment trial, so it won't directly test a new therapy. The condition is newly discovered, so knowledge is still very limited.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
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Locations
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Aarhus University Hospital
RECRUITINGAarhus, DK-8200 N, Denmark
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Antwerp University Hospital
RECRUITINGEdegem, Antwerp, 2650, Belgium
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CHU de Bordeaux
RECRUITINGBordeaux, New Aquitaine, 33404, France
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's & Women's Health Centre of British Columbia
RECRUITINGVancouver, British Columbia, V6H 3N1, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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City St George's, University of London
RECRUITINGLondon, EC1V 0HB, United Kingdom
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Duke University
RECRUITINGDurham, North Carolina, 27710, United States
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Garvan Institute of Medical Research
RECRUITINGDarlinghurst, New South Wales, 2010, Australia
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hamilton General Hospital
RECRUITINGHamilton, Ontario, L8L 2X2, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Inova Health Care Services
RECRUITINGFairfax, Virginia, 22031, United States
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Institut Universitaire de Cardiologie et de Pneumologie de Québec-Université Laval
RECRUITINGQuébec, Quebec, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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London Health Sciences Centre - University Hospital
RECRUITINGLondon, Ontario, N6A 5A5, Canada
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Montréal Heart Institute
RECRUITINGMontreal, Quebec, H1T 1C8, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ottawa Heart Institute
RECRUITINGOttawa, Ontario, K1Y 4W7, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Shaare Zedek Medical Center
RECRUITINGJerusalem, 9103102, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Universitair Ziekenhuis Brussel
RECRUITINGBrussels, 1090, Belgium
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Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Calgary
RECRUITINGCalgary, Alberta, T2N 1N4, Canada
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California
RECRUITINGSan Francisco, California, 94143, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact