NIH launches bone disease research registry to unlock secrets of rare skeletal disorders

NCT ID NCT00024804

First seen Nov 06, 2025 · Last updated May 16, 2026 · Updated 21 times

Summary

This study aims to collect bone samples and medical information from up to 1,000 people with bone or mineral disorders, such as osteomalacia or tumoral calcinosis. Participants receive standard medical evaluations and tests, but no experimental treatments. The goal is to better understand these diseases and support future research.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.