New registry to track Belzutifan's impact on rare VHL disease
NCT ID NCT07554508
First seen Apr 30, 2026 · Last updated May 12, 2026 · Updated 2 times
Summary
This study will follow 100 adults with von Hippel-Lindau (VHL) disease who choose to take belzutifan. Researchers will track how well the drug shrinks tumors, its side effects, and its impact on quality of life and healthcare costs. The goal is to understand the drug's real-world benefits and risks for this rare genetic condition.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Prince of Wales Hospital
Shatin, Hong Kong
Conditions
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