Scientists seek clues to deadly batten disease in new study
NCT ID NCT03307304
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 29 times
Summary
This study aims to learn more about Batten disease (CLN3), a rare and deadly genetic disorder that affects the brain and nervous system. Researchers will collect samples like blood, spinal fluid, and skin from up to 300 people with CLN3 and their family members. The goal is to find biological markers that can be used to measure the disease and help design better treatments in the future. No experimental treatments are given in this study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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