Scientists gather clues in fight against rare, fatal childhood brain disease
NCT ID NCT03307304
Summary
This study aims to collect information and biological samples from people with Batten disease (CLN3) and their family members. The goal is to identify measurable signs, or 'markers,' of the disease that can be used to test future treatments in clinical trials. Researchers will follow participants over time to understand how the disease progresses and build a resource bank for future research.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for BATTEN DISEASE are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.