Heart gene study tracks disease over three years
NCT ID NCT05981092
First seen Jan 09, 2026 · Last updated May 16, 2026 · Updated 27 times
Summary
This study follows about 35 people with a specific genetic heart condition called BAG3-related dilated cardiomyopathy, where the heart is enlarged and weak. Researchers will monitor participants for three years using heart scans, blood tests, and activity tracking to understand how the disease changes over time. No new treatments are tested; participants continue their usual care. The goal is to learn more about the disease to help design future studies and treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Research Site
Palo Alto, California, 94305, United States
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Research Site
Aurora, Colorado, 80045, United States
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Research Site
Boston, Massachusetts, 02115, United States
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Research Site
Rochester, Minnesota, 55905, United States
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Research Site
The Bronx, New York, 10467, United States
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Research Site
Philadelphia, Pennsylvania, 19104, United States
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Research Site
Amsterdam, 1105 AZ, Netherlands
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Research Site
Maastricht, 6229 HX, Netherlands
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Research Site
Warsaw, 04-628, Poland
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Research Site
Majadahonda, Madrid, 28222, Spain
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Research Site
El Palmar, Murcia, 30120, Spain
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Research Site
A Coruña, 15006, Spain
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Research Site
Madrid, 28041, Spain
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Research Site
Harefield, London, UB9 6JH, United Kingdom
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Research Site
London, EC1A 7BE, United Kingdom
Conditions
Explore the condition pages connected to this study.