Researchers seek to measure the true burden of rare blistering skin diseases

NCT ID NCT02753777

First seen Mar 30, 2026 · Last updated May 14, 2026 · Updated 7 times

Summary

This study aims to better understand how severe autoimmune blistering diseases like pemphigus and bullous pemphigoid are, and how they affect patients' quality of life. Researchers will enroll 150 adults with these conditions and use special scoring tools to track disease activity and treatment impact. The goal is to improve how future clinical trials measure outcomes, not to test a new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Hospital of the University of Pennsylvania

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hospital of the University of Pennsylvania, Department of Dermatology

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Pennsylvania, Department of Dermatology

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.