Massive global study tracks rare heart and nerve disease

NCT ID NCT06465810

Recruiting now Knowledge-focused Sponsor: AstraZeneca Source: ClinicalTrials.gov ↗

Summary

This study aims to observe and document the real-world experiences of people living with ATTR amyloidosis, a rare disease that can damage the heart and nerves. It will follow at least 1850 patients for 3 to 7 years, collecting information from their regular medical visits to understand how the disease progresses and how different treatments work in everyday life. The goal is to gather knowledge to help improve future care, not to test a new treatment.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

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La Jolla, California, 92037, United States
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Los Angeles, California, 90095, United States
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San Francisco, California, 94025, United States
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San Francisco, California, 94143, United States
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New Haven, Connecticut, 06510, United States
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Washington D.C., District of Columbia, 20010, United States
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Chicago, Illinois, 60637, United States
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Indianapolis, Indiana, 06200, United States
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Boston, Massachusetts, 02111, United States
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Boston, Massachusetts, 02114, United States
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Boston, Massachusetts, 02115, United States
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Rochester, Minnesota, 55905, United States
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Kansas City, Missouri, 64111, United States
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St Louis, Missouri, 63110, United States
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New Brunswick, New Jersey, 08901, United States
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Manhasset, New York, 11030, United States
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New York, New York, 10027, United States
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New York, New York, 10029, United States
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Durham, North Carolina, 27710, United States
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Danville, Pennsylvania, 17822, United States
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Philadelphia, Pennsylvania, 19104, United States
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Philadelphia, Pennsylvania, 19107, United States
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Greenville, South Carolina, 29607, United States
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Germantown, Tennessee, 38138, United States
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Nashville, Tennessee, 037214, United States
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Dallas, Texas, 75246, United States
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Richmond, Virginia, 23298, United States
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Seattle, Washington, 98915, United States
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Milwaukee, Wisconsin, 53226, United States
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Vancouver, British Columbia, V5Z 1M9, Canada
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Vancouver, British Columbia, V6Z 1Y6, Canada
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Halifax, Nova Scotia, B3RIV9, Canada
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London, Ontario, N6A 5A5, Canada
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Toronto, Ontario, M2J 4W8, Canada
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Rimouski, Quebec, G5L 5T1, Canada
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Beijing, Beijing Municipality, 100730, China
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Changsha, Hunan, 410013, China
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Würzburg, Bavaria, DE-97072, Germany
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Frankfurt am Main, Hesse, 60590, Germany
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Hanover, Lower Saxony, 30625, Germany
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Aachen, North Rhine-Westphalia, 52074, Germany
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Cologne, North Rhine-Westphalia, 50937, Germany
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Mainz, Rhineland-Palatinate, 55131, Germany
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Homburg, Saarland, 66421, Germany
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Berlin, 10117, Germany
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Huelva, Andalusia, 21005, Spain
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Bilbao, Basque Country, 48013, Spain
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Las Palmas de Gran Canaria, Canary Islands, 35010, Spain
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Salamanca, Castille and León, 37007, Spain
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Barcelona, Catalu A, 08035, Spain
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Birmingham, West Midlands, B15 2GW, United Kingdom
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Glasgow, G51 4TF, United Kingdom
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London, NW3 2QG, United Kingdom

Conditions

Explore the condition pages connected to this study.

ATTR ATTR-CM ATTR-MIXED ATTRV-PN HATTR TRANSTHYRETIN AMYLOIDOSIS