New hope for kids with rare bone disease as experimental drug enters final testing

NCT ID NCT06079372

First seen Nov 14, 2025 · Last updated May 16, 2026 · Updated 21 times

Summary

This study tests a new medicine called ALXN1850 in children aged 2 to 12 who have hypophosphatasia (HPP), a rare genetic condition that weakens bones. All participants have already been on the current treatment, asfotase alfa, for at least 6 months. The goal is to see if ALXN1850 is safer and works as well or better at controlling the disease. About 43 children will take part, and they will receive either the new or the current drug by injection.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HYPOPHOSPHATASIA are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Research Site

    Hartford, Connecticut, 06106, United States

  • Research Site

    Baltimore, Maryland, 21287, United States

  • Research Site

    Minneapolis, Minnesota, 55455, United States

  • Research Site

    Kansas City, Missouri, 64108, United States

  • Research Site

    Durham, North Carolina, 27705, United States

  • Research Site

    Nashville, Tennessee, 37212, United States

  • Research Site

    Mar del Plata, B7600, Argentina

  • Research Site

    South Brisbane, 4101, Australia

  • Research Site

    Ottawa, Ontario, K1H 8L1, Canada

  • Research Site

    Bunkyō City, 113-8431, Japan

  • Research Site

    Minatoku, 105-8471, Japan

  • Research Site

    Suita-shi, 565-0871, Japan

  • Research Site

    Yonago-shi, 683-8504, Japan

  • Research Site

    Altındağ, 06230, Turkey (Türkiye)

  • Research Site

    Ankara, 06560, Turkey (Türkiye)

  • Research Site

    Edirne, 22030, Turkey (Türkiye)

  • Research Site

    Erzurum, 25240, Turkey (Türkiye)

  • Research Site

    Istanbul, 34899, Turkey (Türkiye)

  • Research Site

    Birmingham, B4 6NH, United Kingdom

  • Research Site

    Manchester, United Kingdom

  • Research Site

    Sheffield, S10 2TH, United Kingdom

Conditions

Explore the condition pages connected to this study.