Tracking rare kidney disease in china: how treatments affect survival

NCT ID NCT06099236

Summary

This study aims to understand how Chinese patients with atypical hemolytic uremic syndrome (aHUS), a rare and serious blood disorder affecting the kidneys, are treated in real-world hospitals and what their health outcomes are. Researchers will observe 367 children and adults diagnosed with aHUS for up to two years, tracking their treatments and whether they avoid kidney failure or death. The study does not test new treatments but instead observes patients receiving standard care to gather information on disease patterns and results.

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Contacts and locations

Locations

  • Research Site

    Beijing, Beijing Municipality, China

  • Research Site

    Chongqing, Sichuan, China

  • Research Site

    Anhui, China

  • Research Site

    Beijing, China

  • Research Site

    Chongqing, China

  • Research Site

    Fujian, China

  • Research Site

    Guangdong, China

  • Research Site

    Guangxi, China

  • Research Site

    Guizhou, China

  • Research Site

    Hainan, China

  • Research Site

    Hebei, China

  • Research Site

    Henan, China

  • Research Site

    Hong Kong, China

  • Research Site

    Hubei, China

  • Research Site

    Hunan, China

  • Research Site

    Jiangsu, China

  • Research Site

    Jiangxi, China

  • Research Site

    Liaoning, China

  • Research Site

    Shaanxi, China

  • Research Site

    Shandong, China

  • Research Site

    Shanghai, China

  • Research Site

    Shanxi, China

  • Research Site

    Sichuan, China

  • Research Site

    Tianjin, China

  • Research Site

    Xinjiang, China

  • Research Site

    Zhejiang, China

Conditions

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