Researchers map the hidden toll of a devastating rare disease
NCT ID NCT07218536
Summary
This study aims to understand the real-world impact of a rare and serious kidney disease called atypical hemolytic uremic syndrome (aHUS) in Egypt. Researchers will look back at the medical records of up to 200 patients diagnosed over the past 14 years to describe their symptoms, disease course, and how current treatments have worked. The goal is to gather essential local information to help improve future diagnosis and care, as newer, targeted treatments are not yet available in the country.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
NOT_YET_RECRUITINGAl Mansurah, Egypt
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Research Site
RECRUITINGAlexandria, Egypt
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Research Site
RECRUITINGAsyut, Egypt
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Research Site
RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGNew Cairo, Egypt
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Research Site
RECRUITINGNew Cairo, Egypt
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Research Site
RECRUITINGTanta, Egypt
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Research Site
RECRUITINGZagazig, Egypt
Conditions
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