France launches Largest-Ever study on rare tumor disease
NCT ID NCT02867033
First seen Feb 06, 2026 · Last updated May 15, 2026 · Updated 10 times
Summary
This study aims to create the largest French database of people diagnosed with aggressive fibromatosis (desmoid tumors) since 2016. Researchers will collect medical and genetic information from 628 participants to better understand the disease and its link to familial adenomatous polyposis. No new treatments are being tested; the goal is to gather knowledge for future research.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CHU Angers
Angers, 49933, France
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CHU Saint-Étienne - Hôpital Nord
Saint-Etienne, 42055, France
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CHU Toulouse - Hôpital des Enfants
Toulouse, 31059, France
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CHU Tours - Clocheville
Tours, 37044, France
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CHU de Besançon
Besançon, 25030, France
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CHU de Caen-Côte de Nacre
Caen, 14033, France
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CHU de Grenoble- Hôpital Couple Enfant
Grenoble, 38043, France
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CHU de Reims
Reims, 51100, France
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CHU de Rennes- Hôpital Sud
Rennes, 35023, France
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Centre François Baclesse
Caen, 14076, France
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Centre Georges François Leclerc
Dijon, 21079, France
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Centre Henri Becquerel
Rouen, 76038, France
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Centre Jean Perrin
Clermont-Ferrand, 63011, France
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Centre Léon Bérard
Lyon, 69373, France
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Centre Oscar Lambret
Lille, 59020, France
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Hôpital Archet 2
Nice, 06202, France
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Hôpital Cochin
Paris, 75014, France
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Hôpital Mère Enfant - CHU Nantes
Nantes, 44093, France
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Hôpital Privé de la Loire
Saint-Etienne, 42100, France
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Hôpital Saint Antoine
Paris, France
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Hôpital Saint Louis
Paris, 75010, France
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Hôpital d'Enfants- CHU Nancy
Vandœuvre-lès-Nancy, 54511, France
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Hôpital des Enfants
Bordeaux, 33076, France
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Hôpital la Timone Enfants Service Oncologie Pédiatrique
Marseille, 13005, France
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Hôpital la Timone Service Oncologie Médicale
Marseille, 13005, France
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Hôpitaux Universitaires de Strasbourg
Strasbourg, 67098, France
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Hôpîtal d'Enfants Armand Trousseau
Paris, 75012, France
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ICM Val d'Aurelle
Montpellier, 34298, France
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Institut Bergonié
Bordeaux, 33076, France
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Institut Claudius Régaud
Toulouse, 31059, France
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Institut Curie Département Oncologie Médicale
Paris, 75005, France
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Institut Curie Département Oncologie Pédiatrique
Paris, 75005, France
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Institut Curie-Hôpital René Huguenin
Saint-Cloud, 92210, France
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Institut Gustave Roussy
Villejuif, 94800, France
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Institut Paoli Calmettes
Marseille, 13273, France
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Institut de Cancérologie de Lorraine
Vandœuvre-lès-Nancy, 54519, France
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Institut de Cancérologie de l'Ouest - Paul Papin
Angers, 49055, France
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Institut de Cancérologie de l'Ouest - Site René Gauducheau
Saint-Herblain, 44805, France
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Institut de Cancérologie et d'Hématologie Universitaire de Saint Etienne
Saint-Priest-en-Jarez, France
Conditions
Explore the condition pages connected to this study.