Smart jumpsuits and ankle sensors track baby movements in rare disease study

NCT ID NCT07286565

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study uses special wearable devices to monitor how babies and children with spinal muscular atrophy (SMA) or Duchenne muscular dystrophy (DMD) move at home. About 100 children will wear a sensor-filled jumpsuit or an ankle monitor to track their motor skills over up to 30 months. The goal is to find better ways to measure early signs of muscle problems, not to test a new treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study could provide better ways to detect early motor problems in children with SMA or DMD, helping doctors intervene sooner.

What could go wrong

This is an observational study, not a treatment trial. It may not lead to any direct medical benefit, and the wearable devices might not capture all relevant movements.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Duchenne muscular dystrophy spinal muscular atrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Centre de référence des maladies neuromusculaire, Centre Hospitalier Régional de la Citadelle

    RECRUITING

    Liège, 4000, Belgium

    Contact Phone: •••-•••-•••• Email: •••••@•••••