New hope for kids with deadly brain tumors: ACT001 trial launches

NCT ID NCT06838676

First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 27 times

Summary

This study tests a drug called ACT001 in children and young adults (ages 1 to 39) with two types of aggressive brain tumors: DIPG and H3K27-altered high-grade gliomas. The goal is to see if the drug can help control the disease and improve survival. Participants will receive ACT001 after standard radiation therapy, and the study will monitor how long they live and whether their tumors shrink.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • C.S. Mott Children's Hospital

    NOT_YET_RECRUITING

    Ann Arbor, Michigan, 48109, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Children's Hospital Colorado

    RECRUITING

    Aurora, Colorado, 80045, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Children's Hospital of Philidelphia

    NOT_YET_RECRUITING

    Philidelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Children's National Medical Center

    RECRUITING

    Washington D.C., District of Columbia, 20010, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Cincinnati Children's Hospital

    RECRUITING

    Cincinnati, Ohio, 45229, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Duke University Medical Center

    NOT_YET_RECRUITING

    Durham, North Carolina, 27708, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Emory University/Children's Healthcare of Atlanta

    NOT_YET_RECRUITING

    Atlanta, Georgia, 30322, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hopp Children's Cancer Center at NCT Heidelberg (KiTZ)

    NOT_YET_RECRUITING

    Heidelberg, Baden-Wurttemberg, 69120, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Montreal Children's Hospital

    NOT_YET_RECRUITING

    Montreal, Quebec, H4A3J1, Canada

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Nationwide Children's Hospital

    RECRUITING

    Columbus, Ohio, 43235, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Nicklaus Children's Hospital

    NOT_YET_RECRUITING

    Miami, Florida, 33155, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Perth Children's Hospital

    NOT_YET_RECRUITING

    Perth, Western Australia, 6000, Australia

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Queensland Children's Hospital

    NOT_YET_RECRUITING

    South Brisbane, Queensland, 4101, Australia

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Royal Children's Hospital

    NOT_YET_RECRUITING

    Melbourne, Victoria, 3052, Australia

    Contact Email: •••••@•••••

  • Seattle Children's Hospital

    RECRUITING

    Seattle, Washington, 98105, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • St. Louis Children's Hospital

    NOT_YET_RECRUITING

    St Louis, Missouri, 63110, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • Starship Children's Hospital

    NOT_YET_RECRUITING

    Auckland, Grafton, 1023, New Zealand

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Sydney Children's Hospital

    NOT_YET_RECRUITING

    Randwick, New South Wales, 2031, Australia

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Texas Children's Hospital

    RECRUITING

    Houston, Texas, 77030, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • The Hospital for Sick Children (SickKids)

    NOT_YET_RECRUITING

    Toronto, Ontario, M5G1X8, Canada

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.