Scientists hunt for genes behind rare skin condition

NCT ID NCT01630421

First seen Apr 28, 2026 · Last updated May 25, 2026 · Updated 4 times

Summary

This research study aims to find the genes and genetic changes that cause aplasia cutis congenita (ACC), a rare condition where skin is missing at birth. Researchers will study DNA and tissue samples from up to 600 people with ACC and their family members. The goal is to better understand what causes the disorder and how it progresses.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of Connecticut Health Center

    RECRUITING

    Farmington, Connecticut, 06030, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.