Worldwide FOP database launches to unlock secrets of rare bone disease
Knowledge-focused
Recruiting now
This global registry collects information from people with Fibrodysplasia Ossificans Progressiva (FOP), a rare condition where soft tissues turn into bone. Up to 800 patients worldwide can report their symptoms, flare-ups, and mobility changes through a secure online portal. The …
Sponsor: The International FOP Association • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:05 UTC