Rare sun allergy study seeks teens and adults to track daily symptoms
Knowledge-focused
Recruiting now
This study watches how EPP and XLP affect people aged 12 and older over 6 months. No treatment is given—researchers collect data on symptoms, light exposure, and blood markers. The goal is to learn more about these rare conditions that cause severe pain from sunlight.
Sponsor: Portal Therapeutics, Inc. • Aim: Knowledge-focused
Last updated May 14, 2026 12:03 UTC