Ilya Khaytin
Clinical trials sponsored by Ilya Khaytin, explained in plain language.
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Can a global patient registry unlock the secrets of a rare breathing disorder?
Knowledge-focused Recruiting nowResearchers are building an international registry to collect health information from people with congenital central hypoventilation syndrome (CCHS), a rare condition that affects breathing control. The study asks patients with a confirmed PHOX2B gene mutation to fill out surveys…
Sponsor: Ilya Khaytin • Aim: Knowledge-focused
Last updated Sep 05, 2026 00:00 UTC
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Can a global patient registry crack the code of the rare disease ROHHAD?
Knowledge-focused Recruiting nowResearchers are building the first international registry for ROHHAD, a rare condition marked by rapid weight gain, breathing problems, and autonomic nervous system issues. The study invites people with suspected or confirmed ROHHAD to fill out confidential surveys about their he…
Sponsor: Ilya Khaytin • Aim: Knowledge-focused
Last updated Sep 05, 2026 00:00 UTC
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Can a 45-Minute iPad test unlock how CCHS affects the brain?
Knowledge-focused Recruiting nowThis study measures thinking, memory, and attention in people with congenital central hypoventilation syndrome (CCHS), a rare condition that can reduce oxygen to the brain. Participants complete a 45-minute app-based cognitive assessment on an iPad, and parents or adult participa…
Sponsor: Ilya Khaytin • Aim: Knowledge-focused
Last updated Sep 05, 2026 00:00 UTC